@article {modell2001national, title = {A national register for surveillance of inherited disorders: beta thalassaemia in the United Kingdom}, journal = {Bulletin of the World Health Organization}, volume = {79}, number = {11}, year = {2001}, pages = {1006{\textendash}1013}, publisher = {World Health Organization Genebra, Genebra, Switzerland}, author = {Modell, Bernadette and Khan, Maren and Darlison, Matthew and King, Anita and Layton, Mark and Old, John and Petrou, Mary and Varnavides, Lysandros} }